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Looking for information on how to live with Ehlers Danlos Syndrome? 

​This website provides information about how to live with EDS - and shares insights from the community on how to manage the many symptoms of EDS, and how to navigate the healthcare system to get support.

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Our team is dedicated to providing support, raising awareness, and advocating for the EDS community in Ireland. â€‹ Working with others in the Rare Conditions community, we advocate and partner with governmental and medical organisations on how to improve care.

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We encourage you to ​join the Irish EDS community using our private Facebook group (Irish EDS Support) - it connects you to others so you can ask questions in a safe space.​

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Information on this website cannot and should not replace advice from the patient's healthcare professional(s). 

What's on this website?

The following quick links will take you to the relevant sections of the site.

Explore Symptoms and Causes

Factors in considering a diagnosis, and what happens when you're diagnosed

Information on dealing with pain, exhaustion and other symptoms.

Resources - Joining our Facebook forum, official EDS sites, books and videos.

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